supporting the transition from pediatrics to adult services ⋅ Inserm, La science pour la santé

The AD’venir platform of the Robert Debré hospital in Paris helps young patients with chronic diseases in their transition from pediatric services to those dedicated to adults. The goal? Prepare them for a different organization and communication, but also to gain confidence and autonomy, to maintain the best chances of controlling their disease.

For young people with chronic illnesses who are followed in a hospital setting, the transition from pediatric services to those caring for adults can be complicated. While the former are protective, extensively involving parents and organizing care, the latter are based on the patient’s autonomy and responsibility. When “failed”, this transition leads to an opportunity loss: ” This period is usually complicated. It induces a loss of orientation in the course of care, with changes in interlocutors, sometimes inappropriate language on the part of doctors accustomed to seeing adults, a change in lifestyle that impairs therapeutic follow-up… There is a real risk of treatment disruption associated with a worsening of health status -appearance of long-term complications or rejection of the transplant for the recipients- and excess mortality. “Sums up Hélène Mellerio*, pediatrician and adolescent doctor at the Robert Debré hospital in Paris. We are talking here about young patients who often suffer from serious illnesses, requiring daily treatments such as type 1 diabetes, cystic fibrosis, Crohn’s disease, sickle cell disease, HIV infection or malformations.

Anticipate risk situations

Various devices have been tested to ease this transition, including one implemented from the department of adolescent medicine at the Robert Debré hospital in Paris: the platform AD’come